About Me

If you are here checking this out leave me a comment, I'd love to hear from you. I was diagnosed with CF at 21 years of age after battling stomach and respiratory problems throughout my childhood. My mutations are E60X and P67L the later being the one that is excessively rare, seems to take credit for my so far milder progression, and qualified me for the study. I feel incredibly Blessed to be as healthy as I am so far and to be receiving this opportunity to give back to the CF community.

January 18, 2013

Getting Going in the Morning

Musings over the morning. So getting in my Bible devotional assuming the kids don't beat me awake, getting the kids up, ready, lunches packed, myself made presentable are all important to me but for the life of a CF'er there is another very important part of the morning.....

Morning meds.
This picture is a portion of my morning routine this month, just thinking over the time it involves (me to do it) the time it took (people to develop the different meds) the COST...wow this represents a monthly prescription cost of about $35,000 

(two boxes of pulmozyme, one box of cayston, one box of xopenex, and theoretically 60 cayston pills). 



One of these days I'll have to blog over all of it for those of you not as familiar with the CF regimen or just for comparing notes. 

So what does your morning med routine include??


Forgot the KEY to my morning routine today.............COFFEE





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